Patient Journey Director CEE-Russia-Japan

About the role

Sobi, a specialist international biopharmaceutical company focused on rare diseases, is looking for a Patient Journey Director for CEE, Russia and Japan. The role makes the patient journey from first symptom to diagnosis, referral and care outcomes faster, clearer and fairer for people living with C3G/IC-MPGN and severe hypertriglyceridemia (sHTG), and also covers haemophilia secondarily. It works closely with country medical and commercial teams and leads the integration of medical devices and diagnostic-enabling platforms (Florio, Enfuse, diagnostics) into patient journey frameworks.

Key responsibilities

• Own the patient journey agenda for C3G/IC-MPGN and sHTG across CEERJ and maintain a regional patient journey framework that turns diagnostic, delay and post-therapy difficulties into measurable initiatives.
• Partner with countries to map barriers such as awareness, testing access, laboratory and biopsy pathways, referral fragmentation and expert centre availability.
• Build and resource executive plans: prioritized projects with milestones, owners, dependencies and KPIs, reported to senior leadership in Core Medical Team, CEERJ and Brand Team forums.
• Lead projects and matrix teams from start to finish, keeping planning, budgeting and delivery on time and within budget.
• Lead the integration of Florio, Enfuse, diagnostics and pipeline tools, tracking adoption, escalating barriers and proposing solutions.
• Collect and synthesize insights from HCPs, KOLs, patient organisations and country teams, and turn them into recommendations that change plans and decisions.
• Keep up to date with the science, diagnostic pathways, competitive landscape, Tier 1 KOLs and patient advocacy groups, including PNH and haemophilia.

Required profile

• University degree such as M.D., Pharm. D. or PhD, preferably with a biological sciences background.
• Academic, clinical or industry experience in nephrology, cardiology, endocrinology or immunology.
• At least 2 years in a commercial or medical affairs role at a local level in a larger country, with recognized internal and external success; experience in Patient Access, Community Engagement or Diagnostics is a plus.
• Fluent written and spoken English; frequent regional and international travel (about 40% of working time).
• Availability for external meetings, congresses and internal meetings outside standard hours; a valid driver's licence may be required depending on the local set-up.
• The role may be home-based or hybrid depending on the country and local employment set-up.

Required skills

• Project management and leadership, with results delivered on time and within budget.
• Proficiency in Microsoft Excel, PowerPoint and other Microsoft Office programmes.
• Working knowledge of EFPIA regulations and compliance requirements.